‘’FND doesn’t care if I had plans today.”
☀️This morning started well.
☀️I got up early.
☀️I had buckets of ideas & inspiration
But by midday, I crashed. Again



That’s the reality of trying to run a start up & juggle complex health conditions ❤️🩹
Having bin on a 3 year diagnostic journey of… 15+chronic health conditions, I was finally diagnosised with a rare neurological condition – FND – this is the umbrella ☂️ condition causing all this other stuff—apparently.
🧠 Functional Neurological Disorder
Coincidentally & unfortunately my cousin, was also diagnosed with this, unknown to us both, when she developed seizures age 40 recently too🥲
That’s the reality of living with Functional Neurological Disorder (FND)—or complex health conditions & trying to run a start up.
One minute I’m making plans, working on my business… 🌱
Which all things considered is going great 🙏🏼we’re in stores, getting enquiries online & via Instagram, registered & learning about more platforms & even started a blog which already got subscribers!
✨ All from a standing start – 6 weeks ago ✨
I’m riding on a high. When the next thing, I can’t speak, my coordination’s gone, my arm can’t lift, my hand won’t grip, and my leg gives way.
And the fatigue… devastating.
I count my blessings ✨ my pain levels are only mild, I’m not in a wheelchair & I don’t have seizures & best of all, surrounded by love & support from some amazing friends & family & ofcause, my Carl 💙
I want consistency & reliability.
I want the version of me back that shows up, glows up, and gets sh*t done.
But some days, my nervous system has other ideas & when it does. I have to listen👂as catching it early stops the domino
☀️Now each flare up is less severe than the last & lasts half as long 🙏🏼
So, if you’re in the thick of something like this too—whether it’s FND, burnout, fatigue, or just life throwing you an unexpected curve ball— you’re not alone.
💛 Your worth isn’t measured by your output.
💛 Rest doesn’t mean failure.
💛 And in this—you’re still doing something amazing.
Today didn’t go to plan.
But maybe… the plan just needs adapting, to include more rest, or mindfulness breaks, or breathing exercises, or meditation, or better nourishment for the heart & soul.
Whatever it is that resonates with you & works for you the best, because you’re all that matters at the end of the day & there are better & more balanced ways to live if that’s what your after & whole community’s of like minded souls, there’s thousands of us waiting to welcome you 💗
I can share my own experience of living with neurodiversity, complex health conditions, feeling burnt out, changing career paths, nutrition, resetting your nervous system, not as a doctor or consultant but through my own lived experience of what’s worked & working for me & what I’ve learnt along the way & most importantly, with a non judgemental ear of what’s happening for you.
If this resonates with you or you’d just like to know a bit more about this, or how you can get involved with any community projects, DM me, comment below or follow us on Aura & Ash for updates ✨
#FNDWarrior #LivingWithFND #ChronicIllnessBusiness #InvisibleIllnessAwareness #ComplexHealthConditions #BurnoutRecovery #StartupWithFND #RestIsTheWork #YouAreNotAlone

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